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Control over Stories of Illness and Life

机译:控制疾病和生活的故事

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摘要

This article discusses the relationship between nonprofessional media participation and the professional handling of participants. It expands on the case of “Karen”, who related her life-threatening illness and patient experience in a broad range of media before transitioning into professional communications work for a health organization that required her to recruit other patient-participants. The article contributes to research on media participation by focusing on the blurred boundaries between professionals and nonprofessionals. It describes how relationships between the two can be characterized by tensions and dilemmas that are closely tied to issues of status and control. Karen’s case is instructive in the particular light it sheds on such matters and on how control over the mediated telling of a life story is exercised.
机译:本文讨论了之间的关系非专业人士和媒体参与专业处理的参与者。“凯伦”的情况下,相关的她威胁生命的疾病和病人的经验在过渡前广泛的媒体到专业的通讯工作卫生组织招聘,要求她其他病人。有助于研究媒体参与专注于模糊的界限专业人士和非专业人士。这两个之间的关系如何特点是紧张和困境密切相关的问题和控制地位。凯伦的案例是特别有益的光了这些问题,如何控制在介导的生活故事行使。

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